{"id":25373,"date":"2025-08-20T09:09:30","date_gmt":"2025-08-20T09:09:30","guid":{"rendered":"https:\/\/kingscollegehospitaldubai.com\/?post_type=service&p=25373"},"modified":"2025-08-21T08:06:15","modified_gmt":"2025-08-21T08:06:15","slug":"consenting-key-information","status":"publish","type":"service","link":"https:\/\/kingscollegehospitaldubai.com\/ru\/service\/kings-dna-clinic\/genetic-screening-in-children\/consenting-key-information\/","title":{"rendered":"Consenting Key Information"},"content":{"rendered":"

King\u2019s Genomic Testing Consent Form<\/h2>\n
\n
\nIntroduction\u00a0<\/b><\/p>\n

This programme aims to identify genetic conditions in new-born babies that may require early <\/span>\u00a0<\/span>intervention. Before you proceed, please read this consent form carefully to understand the nature, <\/span>\u00a0benefits, and potential risks of the screening.\u00a0<\/span><\/p>\n

Purpose of the Screening\u00a0<\/b><\/p>\n

The goal of this screening is to detect genetic variations that may indicate a predisposition to certain <\/span>\u00a0<\/span>health conditions. Early identification can allow for timely medical interventions and better health <\/span>\u00a0outcomes.\u00a0<\/span><\/p>\n

Procedure\u00a0<\/b><\/p>\n

A small blood sample will be taken from your child, and their DNA will be analysed to identify genetic <\/span>\u00a0variations. The results will be shared with you and your healthcare provider.\u00a0<\/span><\/p>\n

The technology used is called whole genome sequencing. Although the test is capable of analysing <\/span>\u00a0<\/span>your child’s entire genome, for the purpose of relevance we will be only reporting for the presence of <\/span>\u00a0<\/span>around 400 genetic variations that will have implication on your child’s health at this moment. The <\/span>\u00a0sequenced data can be re-analysed for other conditions any number of times in future.\u00a0<\/span><\/p>\n

Potential Benefits<\/b><\/p>\n

    \n
  1. Early detection of genetic conditions\u00a0<\/span><\/li>\n
  2. Ability to manage and treat conditions proactively.\u00a0<\/span><\/li>\n
  3. Informing healthcare decisions for your child<\/span><\/li>\n<\/ol>\n

    Unexpected Findings\u00a0<\/b><\/p>\n

    The screening may reveal unexpected genetic findings not related to the initial purpose of the test. <\/span>\u00a0<\/span>These findings could include:<\/span><\/p>\n

      \n
    1. Genes associated with adult-onset conditions.\u00a0<\/span><\/li>\n
    2. Carrier status for genetic disorders<\/span><\/li>\n<\/ol>\n<\/div>\n
      \n

      Variants of Uncertain Significance (VUS)\u00a0<\/b><\/p>\n

      Some genetic variations identified may be classified as Variants of Uncertain Significance (VUS). These <\/span>\u00a0<\/span>are changes in the DNA whose impact on health is not yet known. To reduce the anxiety and <\/span>\u00a0<\/span>uncertainty related to test results for the purpose of newborn screening we will not be actively <\/span>\u00a0<\/span>reporting variants of uncertain significance. However, if the child develops symptoms of any particular <\/span>\u00a0<\/span>condition we can re analyse the genetic data to see if there are any variants of uncertain significance <\/span>\u00a0related to those symptoms\u00a0<\/span><\/p>\n

      Implications on Wider Family\u00a0<\/b><\/p>\n

      The results of your child\u2019s genetic screening could have implications for other family members. <\/span>\u00a0<\/span>Certain genetic conditions are hereditary, meaning other relatives could be affected. You may be\u00a0<\/span><\/p>\n

      King\u2019s Genomic Testing Consent Form <\/b><\/p>\n

      encouraged to share relevant findings with family members who could benefit from this information <\/span>\u00a0for their own health and genetic counselling.\u00a0<\/span><\/p>\n

      Implications on Insurance\u00a0<\/b><\/p>\n

      Participating in the genome screening programme may have implications for insurance. While current <\/span>\u00a0<\/span>laws in many jurisdictions protect against genetic discrimination, it is important to be aware that <\/span>\u00a0<\/span>genetic information could potentially impact life, disability, or long-term care insurance. We <\/span>\u00a0recommend consulting with an insurance advisor to understand these implications fully.\u00a0<\/span><\/p>\n

      Confidentiality and Data Protection\u00a0<\/b><\/p>\n

      Your child’s genetic data will be stored securely and will only be accessible to authorized personnel. <\/span>\u00a0<\/span>Results will be shared with you and your healthcare provider. The data will only be used for research <\/span>\u00a0with your specific separate written consent.\u00a0<\/span>\n<\/div>\n<\/div>\n","protected":false},"featured_media":0,"parent":15744,"menu_order":0,"template":"","service-category":[12053],"class_list":["post-25373","service","type-service","status-publish","hentry","service-category-peds"],"acf":[],"aioseo_notices":[],"aioseo_head":"\n\t\t\n\t\n\t\n\t\n\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t\n\t\t